Genetic counselling review
The role of a genetic counsellor is to provide you with information and help you to make decisions about the genetic aspects of condition such as NF2. The NF2 Genetic Counsellor may contact you before you are seen in clinic to find out some information about your family history. Genetic counsellors can talk to you about how NF2 might be relevant to other family members and discuss ways of sharing that information with relatives. They can also provide information around the options available when planning a family.
Anita Matadeen
Genetic Counsellor
Surgical review (Neurosurgery, ENT)
You may see a surgeon who will be able to discuss the treatments that are available for the benign tumours that NF2 can cause. The surgeon will explain the procedures and any associated risks or benefits. You will have the opportunity to ask any questions.
Plastic surgery review
You may see a plastic surgeon who will be able to discuss the treatments that are available.
Psychology review
Clinical Psychologists offer support to you and your family at whatever stage of treatment it may be needed. They are available to discuss the emotional impact of living with NF2 and work with you to maximise your coping and quality of life.
Read more about our Clinical Psychologists
Dr Rachel Woolrich
Clinical Psychologist
Nursing review
The Advanced Nurse Practitioner's role is to provide support to you and your family and carers, by being present at clinic appointments, visiting you in hospital and at home and answering queries or concerns on the telephone or by email. They can provide general information on NF2, specific information on surgery and treatments and practical help with applying for benefits or equipment at home. They can also direct you to local and national resources.
Audiology review (Level LG1)
In the audiology review you will meet the Audiologist and/or Hearing Therapist. You will have a hearing test as part of your appointment. Hearing tests are usually carried out annually so they can be compared from year to year. The hearing therapist can advise and assess you on your hearing and any appropriate aids.
If appropriate, you may be referred for other appointments in Audiology if you are considering a hearing implant or have an implant which requires tuning & maintenance.
Eye Review (Level LG1)
The eye review looks at vision loss. This affects up to a third of individuals with NF2, and especially important in the context of hearing loss. Vision loss is often preventable with timely eye examination and treatment. This includes management of cataracts, corneal surface problems after intracranial surgery, double vision and the visual consequences of raised intra cranial pressure.
Ms Sri Sharma
Consultant Ophthalmic Surgeon
Ms Caroline Dodridge
Orthoptist
Physiotherapy Review (Level 2)
The Physiotherapist will look at balance issues, difficulty walking/mobilising or maintaining your fitness. They can assess and provide an individual exercise programme to improve these and also enable you to access treatment and advice on exercise to maximise your function.
