Telephone advice
JR Epilepsy Advice Line: 01865 234222
The nurse is not always in the office, but answerphone messages are checked daily and we will call you back as soon possible - include your name and contact telephone number.
Assistance post-surgery
JR Switchboard: 0300 304 7777 - ask to Bleep the Neurosurgical Registrar on call.
National helplines
Epilepsy Action: 0808 800 5050
Epilepsy Society: 01494 601400
Young Epilepsy: 01342 831342
Websites
Information and support
- Epilepsy - NHS website
- Epilepsy Action
- Epilepsy Society
- Epilepsy Surgery Friends
- SUDEP Action
- Young Epilepsy
- Oxford Centre for Enablement (OCE)
Research
Oxford Epilepsy Research Group
Epilepsy care
Overview | Epilepsies in children, young people and adults | Guidance | NICE
Getting the right treatment and care for your epilepsy in England and Wales
Managing epilepsy
Epilepsy safety - SUDEP Action
Using Seizure Diaries - Epilepsy Foundation
Cognition / language difficulties
For people experiencing memory or language difficulties e.g. word findings.
A collection of apps designed by speech and language therapists to help people with word finding difficulties. Cues help people to name the image. The introductory app is free but additional apps incur a cost.
Memory and mood
Memory problems and epilepsy - Epilepsy Action
Links between epilepsy and mood - Epilepsy Society
Wellbeing
This course aims to teach you how to take simple steps to manage your epilepsy and improve your wellbeing. It covers the links between epilepsy and your wellbeing, seizure triggers, taking epilepsy medication, memory and stress.
